July 26, 2013

Keep it confidential

Just when I thought everything is under control. Past creeps up in the form of Facebook and Whats App, which were once friends, perfect examples of modern technology. They are still friends, but they have lost that special friend status. See, Whats App messages can be saved and used and abused whenever more ammunition is needed. It is a handy communication tool, but leaves a record of held conversations. Of course it does. In this day and age of cellphones, SMS, e-mails, Edward Snowden and other famous faces, there is also recording in the cyberspace.
I think we all know someone, whose fingers have slipped and they have sent wrong message to a wrong person by mistake. Jeez I have done that myself, and then had to explain what and why I sent the message. Great if it was a joke about how many psychiatrists are needed to change a lightbulb ( = one, but it will take time and the lightbulb itself must want to change), but something more serious, therein lies the issue.
Cyberspace is absorbing new information evey second. That's where this blog will end up too.
Perhaps that's where Mr Snowden would like to disappear for a while too. I think he would like Angry Birds Star Wars space, he would be like that pink Princess Leia bird character flying all over the place. Yep, pink and fluffy, sure.
In other words, don't publish every word and opinion in Facebook. Avoid Whats App, if you have top secret stuff to share. Even better, don't share confidential stuff anywhere. Keep it to yourself, because sharing it in person even in the deepest thickest coldest Siberian forest, someone may be watching. Look, it is the Internation Space Station! And there, look, man, it's a satellite.
Eyes and ears are everywhere.

July 14, 2013

Life without cancer

There is suddenly more capacity to store information in my brain, at least that's what it feels like. Cancer does not occupy my thoughts that much, hardly at all nowadays.
Despite of not having had my post radio iodine six month check-up, I feel good, whole and happy.

Friend of mine in Facebook published pictures of her cancer journey, and it shows cancer can really wreak havoc in your life, turn everything upside down and inside out. All in all it is just garbage that any of us have to deal with cancer. Or any other short or long term illness. Mind you, common cold can be really and truly annoying, if not even disabling.

When that day comes, when we can say we have kicked cancer's butt, everything in life becomes precious and each day feels pretty good. Good to be alive. No matter what disability we may have as a result of cancer crap, we are still there. Tiniest things such as "people" speaking about you behind your back, does not really matter. Their opinions about you and your life don't matter much either. Your safety network is elsewhere, and other people's opinions don't weigh much. Your life is yours and you know what you are made of. I recently found out that "people", who I one considered friends, or at least "good guys", have turned out to be totally different. Talking behind my back, making comments etc, but I could not care less. I just don't. Why would I care about them and their opinions????? Have they ever gone for mandatory cancer journey? No. So why would I care?
Am I scared of them? No way. I can easily tackle this.

Has cancer changed your personality? It has changed mine. I question things and do not accept just anything. Previously I was shy, timid, introvert and did not like going out much. I did not really choose my friends carefully. I worried a lot about future, about tomorrow, about job interviews, finances, doctor appointments.
I still worry, but much less, because I know who I am. I can look myself in the mirror, and know my value. I am definitely more outgoing, selective about people I want to meet and activities I want to do. I am physically and mentally stronger, thanks to crossfit, yoga, riding, healthier food I eat.

I still have days when I feel like wrecked, but I know it will not last forever. I do something I really want to do each day. I probably would have done more or less same with or without cancer, but cancer speeded up the learning process. Wherever I am now, I am meant to be there, but I can certainly control some facts. Time to leave? Move to another continent?
Time will tell.

July 02, 2013

Rest in Peace

Two people died, just few days between them. Thousands of miles between them.
One was a bubbly happy young lady, whose blog I have been following for quite some time now. She put up a real fight against cancer, but unfortunately this is how it ended. She is no longer in pain, and is surely watching over us now. Her blog was a great inspiration to me, uplifting, cool, funny, everything! Despite of cancer, she still made every day count. Rest in peace Michelle. You are very much missed.

Another person was someone I knew a lot better, having been working with him for 3 years. Him not being there is a great unmeasurable loss, and grief and sadness can't be described. He was a good man, dying in the midst of doing something he felt passionate about. There is still certain amount of disbelief and many many questions, which will probably be left unanswered forever.
I was lucky and blessed I got to know him. He is.. was a person with big heart, compassion, sense of humor, approachable, always smiling. If he was not smiling, he just needed a word of encouragement  and he was ok again.
It is a great loss. He is very much missed, and there are days when I just can't believe he is gone. Rest in peace IS.

June 21, 2013

Too late to cry now

Late in the evening thoughts of my old horse appear out of nowhere. He has been gone for eight months now. Exactly.
How did I spend that day then? Never ever I have had to make such difficult decision in my life. How do you decide to put great animal like horse down? Or any animal for that matter? Or human?
How- I have no answer to that despite of what the horse and I went through that day.
I temporarily traveled into another reality. My escape was Valium. I remember every moment, just like I feel I should, but it is blurred and events were taking place in slow motion. I took him out of the stall. I asked him to go find my father, who passed away on 6/6/2012. I asked him to forgive me for what I was about to do.
There was no way going back once the decision had been made. The horse was the very best thing, very best that happened in my life, gift from God. I remember the very first day when I met him. He was in run pen and riding instructor J told me to go say Hi, because the horse and his owner were looking for rider and maybe new owner. White, flea-bitten, 15 something hands high horse was at once interested in me. I was carrying stirrup irons in my hand, he smelled them and thought what weird human, but I felt we both accepted each other instantly. I was recovering from thyroid cancer.
I wanted to ride him one morning. I asked the groom what time The Horse wakes up. I don't think the groom thought I was serious, but I was. It turned out that the horse could wake up at any time and be ready for a ride.
He became mine. Just mine. He was much like my unborn baby.
He was cool. He smelled like any other horse, but his smell was unique to me. I loved to blow air into his nostrils. I massaged his ears. He almost fell asleep leaning on my shoulder. He had kind expressive brown eyes, and sweet nature. He bit me once, just once, but that was my fault, because my thumb was in his mouth. He has many names: Mr S, Hiro and Shadowfax, just like the horse from the Lord of The Rings. I fell off him, when he bolted, then arrived in the yard and made a sudden stop. I was half way up there, half falling off. New sticky chaps kept me hanging on, but when gravity won, I landed next to horse, on my back. Wow, horse was looking at me from a very new angle. Had he been human, he would have been the person I would have married- and there are not many such people I know in this world, at least I had not met them yet.
He saw something that cannot be unseen once during the ride, and he was in a hurry. When I attempted to slow him down, he started bucking. If I let him run, he took off and galloped. I could not do both, so I hung on for my dear life. No matter what I said, he did not listen. I lost the reins, held on to the mane, lost the stirrups and the fact that I was on the Western saddle, may have saved me from falling. The horse must have had fun. To this day I don't know what he saw or heard and it remains mystery. Legs shaking I dismounted, close to the stable, and he took off leaving me walk home by myself. Poor guy, something scared him. Of course, in hindsight, I know exactly what I, the rider should have done. Sit back, deep in the saddle, keep calm. I leaned forward, nearly holding on to the horse's ears. I was telling him to stop in multiple languages. I was looking at the ground. I was scared too and that told the horse there was reason for running. Grooms caught him in the stable yard. I did not choose the same rout for some time after that, just in case the horse would decide to run again.

I often let him wander around and graze. I was quite happy sitting on his back. Sometimes on saddle, sometimes bareback pad. It did not even enter my mind that he would ever bolt. Our first year was trail riding, and we never had issues, no bucking, running, bolting. He was 100% reliable, but I knew he still had lively part in him and spark in his eyes. I took lessons on him. I knew he was old, so we did not jump many times, but those times when we managed some small jumps, he cantered happily across to jump. Happiness was contagious.
I remember his first colic. I called the vet, all business-like, professional, but inside I was hurting. Poor guy was in so much pain. Worry over something always gave him colic. I promised him not to have to worry about anything anymore. Never.

We had countless good rides and great moments in lessons. He and the riding instructors taught me invaluable things.

All along the horse knew what was happening. Somehow animals know. He was 25 when I got him. I was older, but in horse years he was a senior citizen.
He spoke to me in many different ways in his own horsey dialect. He listened, never judged, never told me to stop crying. He was growing old all this time.  He was quiet, at times looked depressed and wanted help. I did not know what kind of help, so I called the vet, farrier, let some other riders ride him. I brought him his favorite, water melon. I could not bear the thought of him having to leave me one day. He just looked at me straight in the eye: he knew all he needed to know. He knew me. He knew all my secrets. He had sixth sense, which warned me of what was to come one day soon. First I got sick again, and he held me and kept me going. He kept pointing at my neck each and every time I visited him, he told me to get my neck checked. Cancer had returned and had the horse just made an accurate diagnosis? I was sick with worry that I would in fact leave him and there was no one else for him. Then he was just not himself again. Spark in his eyes was gone. He still wanted to go for rides, but could not manage long strenuous rides. Neither could I. He still wanted his carrot treats, but could not chew well. It became a circle of colic and recovery, and then another one.
Did he want to go at that stage? Was he aware that life is in its final stages and death was inevitable? Would he have to die so I could carry on living?

I recovered enough so I could have that one last treatment, miracle cure, that would allegedly be the final step in healing process. I underwent the treatment- combination of many, and I was back. The horse was no longer there

The horse had lovely Stübben saddle and bridle. He had bright green-turquoise feeding bucket. He was always so keen on having his meals and treats. I bought him pink saddle pad- everyone's favorite. Never mind he was a boy. He had most amazing canter. He was always polite and well mannered. He gave me confidence in every possible way. His presence was enough to make me forget bullying and nasty colleagues at work. He gave me countless times of joy and happiness just by being there. I could go and sit with him in the stall and lose track of time. Sometime I did not even want to go home, because there was yet another carrot and kiss to give him.
I had my last riding lesson on him in June 2012.

He departed this life very much same way he came into my life. One day he was here, next moment he was gone. He was buried in the desert, next to his friends. His grave site is quiet, and I have visited it just once. At this time of the year, sun makes the desert boiling hot, and I know the horse does no longer feel cold. Nor is he alone. Good horses and animals like him go to stay with God.

The horse had no longer go through pain, stiff aching joints, difficulties chewing his food. No fear of veterinarian. I pray that he forgives me for what I had to do. I have been told it is the kindest thing to do for sick and/or senior horse. I can't stop wondering what his life would have been like, had I not made decision to euthanize him, but there is no way of returning into the past. No way of getting back the tears I cried, and no matter how many accusations I made to punish myself, he will not be back. Perhaps he has now completed his life cycles and will not return to earth. He is my guardian angel, watching over me. There are not many days when I do not think about him.

Hours later I woke up from Valium induced stupor, I realized I had missed dressage and jumping show at the stable. Husband had driven me home and put me into bed. I knew I was at home and what had happened earlier, but I was still numb with shock and denial. My horse had been euthanized, decision made by me, no one else. Sense of responsibility and accountability weighed heavily on my shoulders. Far too heavy, just like coming weeks and months would prove.

I had cancer, but I also had hope. Somewhere in the back of my mind I knew he had given me an opportunity to heal by taking my illness with him.
He had gone to heaven. Good horses like him go to heaven.

Few weeks later I had to ask the riding instructor when the show would be held. He replied that the show had already taken place. Where was I? I was asleep, in another reality, where nothing was real at all.

Life took its time to get better and my healing process began so at least I could function again. To this day my challenges are variable,  anything from numb fingertips to attention deficit issues- origin of this is probably elsewhere, but it is a challenge I intend  to overcome. Sometimes I still wonder where exactly he is? Heaven is enormous- will I ever find him again? Did he find my father, my grandparents, our dogs, my aunt, who passed away when she was in her 40's? Is the horse feeling well? Can he forgive me, just like I have forgiven my father for his sins? The horse became an important and permanent part of my family when we met.

I will look for him.


Natasha Bedingfield - A Little Too Much


June 11, 2013

Sans commentaire




Feeling like Edward Snowden

Not nearly as famous of course and not on the very same scale at all.
I'm not here to talk about Edward though, but about my own small scale incident at work.
Work- that's where it all starts and where it ends. Inspiring, uplifting.. not today. 
I thought honesty is a virtue, but little white lies could still be OK at times, but not when just seconds separate you from the truth and you are about to get caught.
OK, all I did was admitted that "I do not know". Perhaps I should have said "yes, I know", and risk being discovered moment after that. Caught in a lie, red handed and red faced. No good.
What I said was the truth, but "inappropriate" in some other people's opinion. Life is full of surprises. Miserable boss gave most invaluable feedback by saying "Nothing personal, but I am pointing at you...). How could it be personal if another person stares at you and points finger at you...????? How?

Straight up, I was honest, way too honest in this case.
Correct way of handling this would have been either not saying anything, not admitting or revealing I don't know, that I may have forgotten and I am a jerk.
Correct way in MY mind was that I am responsible of my own lack of knowledge, that I am tired of hiding.
That I am correct in being honest.

I am nowhere near Edward Snowden here, but I think I may just understand tiny bit of what he is going through right now. Given option now, plane ticket to The Lone Star State
I'd probably start packing.

But I'll wait just a bit. Waiting for the night. Wait for tumor marker results. Wait for better day. 
 

June 08, 2013

Fear is a phobia

In my my worst nightmares I see and experience disease related things I would never want to encounter.
Then I wake up and realize this is real life.
Zero Hour.
I am realizing that there are things I never ever want to do, never, if I had an option. Such as having anything painful, humilating and/or embarrassing done to me. I don't want to have tattoo, bone marrow aspiration, endometrial biopsy. Theses are just some examples. I am not fond of blood tests, finding out that I have cancer, or that I have to pay extra taxes. I'd not want anything awful to happen to my family, friends, animals, other people, whether they are known to me or not.  I hate injustice, violence, animal cruelty. 
Light bulb moment (or a-ha moment as Oprah calls it)- I know for sure that I am myself, no one else and I am responsible of my life. I am beginning to realize that I am stronger than I have ever been. I may never be offered Nobel prize, but I am still someone important. I've been looking for lost kindness toward myself, and feel I have now found it.
I have freedom of choice. Going to dentist may not be something I like. Something I find utterly awful, but I've still got to do it. Two years from previous dentist visit, and I have almost forgotten what the last visit felt like. Going to oncologist's appointment feels essential, but it is with great reluctance I step into the clinic. Prospect of another radioactive iodine treatment? Right now I'd say no, never again. Ask me another day, I may say yes.
There are so many factors to consider. 
Sometimes there is an option say No. If no is not an option, then there are factors that may make experience almost pleasant and make it something that can easily be forgotten. Dentist visit? Take sedative. That's what I have to do. After swallowing the pill, I feel good and don't mind anything or anyone.
One down, 10 to go.

As per textbook, when it comes to cancer treatment follow-up, these visits are necessary and a must.
Well, well, well textbook. I am responsible of my own well-being and I get to make the decision. Being kind to myself vs. forcing myself go somewhere where I'd rather not go. After thinking about my options a bit I usually go. Sedated, clear-headed, whatever, but I show up. Because I know I can always say NO. Dentist appt+ sedative. Bone marrow biopsy+ iv sedation. Ob-gyn appt+ a couple of sips of brandy. PET scan+cowboy boots.
Chemo encounter+ high heels and lipstick.

Being kind means doing all this unpleasant stuff too, but in any means possible. You get to your goal, whatever methods you use is up to you. 

Earthdate 6/8/2013

I am just watching document on TV about the meteor in Russia in February.
Few weeks later I saw a cartoon of Angry Bird, who was flying across the sky, instead of that meteor.
Earth was saved once again from total destruction.